I'm no doctor, just speaking from experience......
I'm glad to hear you have someone helping you thru this. Most importantly, you need a doctor that will support it and help you out. I went to years of specialist trying to find out what was wrong with me, I knew I wasn't crazy and FINALLY found a doctor that knew all about it and it just made sense. I had the laproscopic done first and they found I had stage 4 endo, it was everywhere. Sometimes it can be in a ball other times it attaches to your insides. I was in so much pain for such a long time. Yes, sex became a problem for me, hurting very badly (in any position) so husband didn't want to hurt me anymore.
The laproscopic surgery was an outpatient surgery for me. I have a small scar at my belly button and was bruised afterwards there. I did it on a Friday and was back at work on Monday. The most pain for me was the gas pressure that they put in you to look around. During this procedure is when my doctor found it all over the place, my ovary and falopian tube ruined. They cleaned what they could up and the next surgery was to run dye thru my tubes, the right one ruined by endo. Next surgery, removed my tube and ovary and I felt soooo much better it was unreal. Sex became part of my life again too! That surgery I was out of work for 6 weeks. Then I had some more to check it out. Each time they went in (after cleaning it the time before) it would be back. I was put on Lupron shots to stop my period in order to have some time for my body to get some relief and it was great!
After I found some comfort, I decided to have a hysterectomy, knowing that is the only way I would ever feel better. My doctor didn't want this for me and sent me to a fertility specialist to get a second opinion. I had no children. We went to the specialist, did several fertility treatments to just be told my body couldn't do it. We gave up on that part. I later became pregnant on my own and now have the most beautiful baby ever. My endo was on hold during the pregnancy and will be as long as I breastfeed. When I stop that, it will return with periods. I DO NOT look forward to it.
Yes, find a doctor that will help you with endo...there are so many that don't really do anything about it because a lot don't know why we get it, etc.
I wish you much luck and please feel free to contact me anytime. It can be very hard to deal with being in pain and not knowing what to do.
Hugs,
IWM

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~Tainted Love~